As I have talked about in other blog posts. But if you are new to my blog or forgot. I have been apart of a clinical drug trial for 2 and a half years. For the first two years I was apart of a double blind-double dummy type of trial, which in short means that no one actually knows which drug I was on. We all had a sneaky suspicion that I wasn't on the study drug. But the plus was that I was taking one of the two drugs. After my two years I was switched over the the actual study drug. Which had great "reviews" from my neurologist as well as other patients u had met while apart of the trial. 
After two years I got my first dose. It was split into half and given to me two weeks apart.
When I was a few weeks into this new drug people would ask if I noticed a difference.
But at that point I honestly hadn't. I was still really fatigued. However to me that was life. I then went to my parents at Christmas. And it was then that people would tell me I looked really chipper or that I had a "sparkle" in my eye. Still I just said that I was getting good at not always putting on my "not" tired face.
However when I went back to university in January I noticed that I was able to study past 2pm was has never happened since my diagnosis, I didn't seem quite as foggy, I didn't have pain in my hands.
It wasn't until I hit the 5 month mark of being on the new drug that I noticed the drug did something for me. At the beginning of February I was hit with a greater amount of fatigue than I had since my first infusion. It was amazing how I didn't even notice how good I felt until my brain would shut down at 11am. I could not figure it out for a few weeks. Until I remembered other patients stating that they felt the drug starting to wear off at 5 months.
So today I was back in Vancouver getting my second dose. Which was a full dose that took about 5 hours to infuse.
It's always a really long day when I go down to Vancouver. I often go the day before and stay the night on UBC campus. I usually try to connect with my cousin for a friend or two while I'm down there which makes the trip so much better and not as lonely. Sometimes my parents come too.
One of my favourite parts is flying home from Vancouver. Especially on a night where the sunset is gorgeous. Tonight was one of those days. Flying over the snow covered mountains. Pictures just don't give them justice. But it makes me smile and feel like I'm 10 and flying for the first time, nose pressed to the window watching in awe. But, this is me and my day in a nut shell. Started early, ended late, and I'm ready to crash in my own bed.
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For those of you who ask or are curious about my nursing, I am officially done this semester I have two more (ish) weeks of classes and then 4 weeks of placement. I am getting more nervous the closer I get to having to write my big exam. It's one that I would love to write only once.
If you are willing I would love prayer as I get closer and start studying for it.
1. For focus and the ability for my memory to retain the information I have studied.
2. For continued energy to finish my courses well and to the best of my ability
3. That this drug would continue to be the answer for my MS. [since being diagnosed I haven't had any huge relapses. This is a big deal when I look at the amount of relapses I had before I was even diagnosed]
Thanks again for reading and praying for me.
Send me an email or comment if you ever have questions or are looking for more information. I would love to chat. :)
Kate
